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Our Mission:
To work with urgency to collaboratively improve outcomes of rare epilepsy patients and families by fostering patient-focused research and advocacy
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To support, grow, and maintain a network of rare epilepsy groups formed around a living overarching structure tasked with defining REN projects, in which REN groups are able to choose to participate. Learn more about our mission & vision here.
Our Vision:
What Are the Rare Epilepsies?
A rare epilepsy is considered rare when it affects less than 200,000 people in the United States.
Subscribe to Our Newsletter
The Rare Epilepsy RoundUp Newsletter is a monthly e-newsletter that keeps our membership up-to-date on member news, research, events, funding opportunities, and more. Read the current one and archived newsletters to catch up on all things rare epilepsies.
Calendar/Member Events
Check out upcoming events for REN members and partners
If you'd like to add an event, click here
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