Advice

Jul 30, 20213 min read

Sibling Support and Resources

A special thanks to Alycia Halladay (Autism Science Foundation), Betsy Pilon (Hope for HIE), Brandy Fureman (Epilepsy Foundation),...

Jul 30, 20212 min read

Tips on Finding Interns

Several REN MEMBERS have inquired how to find interns. Advice from our Members follows below. Thanks in advance to Kari Rosbeck (TS...

Jul 30, 20216 min read

What is an R13 Grant? Should You Apply for an R13 Grant?

Conferences, symposiums, and meetings for research, clinical and other health professionals are a great way to exchange information, set...

Jul 30, 20212 min read

Tips on Creating of Professional Advisory Board

This blog would not be possible without the helpful guidance from REN members Kari Rosbeck (TS Alliance), Jo Anne Nakagawa (TS Alliance),...

Dec 7, 20202 min read

Finding & Creating a Rare Epilepsy Community

Diagnosed with a new rare epilepsy and looking for community? Tips follow from the Rare Epilepsy Network (REN) leaders. Do a google and...

Nov 25, 20201 min read

Add Your Research Grants to ERC

The Epilepsy Research Connection (ERC) is a repository of epilepsy research funding opportunities from non-profit and government...

Nov 20, 20202 min read

Tips to Navigate AES

The annual American Epilepsy Society is just around the corner. AES2020 is slated for December 4-8 and will be a virtual event for...