About DLG4 Synaptopathy DLG4-related synaptopathy is the medical diagnostic term, though most families refer to the disorder as SHINE...

About PERC The Pediatric Epilepsy Research Consortium (PERC) began forming in 2010 when two groups each began an effort to mobilize and...

Introducing Lennox-Gastaut Syndrome (LGS) Foundation

This September marks the annual Newborn Screening Awareness Month. This month is dedicated to celebrating and raising awareness for...

The newly added REN Map. The Rare Epilepsy Network has created a new page for families and clinicians to use! With 80+ organizations...

The month of July marks Social Wellness Month! Social Wellness Month is meant to highlight the positive effects of healthy relationships...

This May celebrates Asian American and Pacific Islander Heritage Month. This month is dedicated to celebrating the contributions Asian...

About GABRB2 GABRB2 epilepsy has a range of phenotypes from febrile seizures to severe developmental disabilities, epileptic...

Purple Day takes place annually on March 26 as an international effort to spread awareness and resources about epilepsy. It’s a...

About Jordan's Syndrome (JS) or PPP2R5D-Related Neurodevelopmental Disorder Jordan’s Syndrome is a neurodevelopmental disorder caused by...

March 13-19 marks Sleep Awareness Week 2022! Sleep Awareness Week celebrates and encourages healthy sleep. For those touched by the rare...

Celebrate International Epilepsy Day & The Rare Epilepsies on February 14! Celebrated on the second Monday in February and founded by The...

MANY CAUSES OF EPILEPSY ARE RARE Although epilepsy as a diagnosis is not rare, many causes of epilepsy are rare. When the underlying...

Black History Month is celebrated all throughout February. The purpose of this month is to honor African Americans from every time...

Raising Awareness of Rare Epilepsies During National Epilepsy Awareness Month (NEAM)

REN acknowledges that other organizations recognize differences between “mental health conditions” versus “mental illnesses” as a...

Bosch-Boonstra-Schaaf optic atrophy syndrome (BBSOAS) was discovered in late 2013.

Del 15 de Septiembre al 15 de Octubre, se celebra el Mes Nacional de la Herencia Hispana, un mes dedicado a celebrar la historia y los...

September 15 - October 15 celebrates National Hispanic Heritage Month - a month dedicated to celebrating the history and accomplishments...

A special thanks to Alycia Halladay (Autism Science Foundation), Betsy Pilon (Hope for HIE), Brandy Fureman (Epilepsy Foundation),...