REN20 hours ago1 min readHot off the Presses - Nov 2024Catch up on all the NEWs across the rare epilepsies.
RENOct 161 min readHot off the Presses - October 2024Catch up on all the NEWs across the rare epilepsies.
RENAug 231 min readIn Their Own Words - PAMEMeet Partners Against Mortality in Epilepsy (PAME) and it's dedicated Leaders We are thrilled to announce a new VIDEO series introducing...
RENApr 242 min readGet to Know "Life" Association for Rare Diseases in ChildrenAbout "Life" Association for Rare Diseases in Children Our association is an umbrella association of patients suffering from various rare...
RENApr 242 min readGet to Know DYNC1H1 AssociationAbout DYNC1H1 Associated Neurological Disorders DYNC1H1 Associated Neurological Disorder (DAND) encompasses a recently identified group...
meranelakel9Mar 194 min readGet to Know the Pediatric Epilepsy Surgery AllianceAbout Pediatric Epilepsy Surgery: Surgery is the least utilized treatment in all of epilepsy. Many different surgeries can stop or reduce...
RENFeb 17, 20233 min readGet to Know Pediatric Epilepsy Research Consortium (PERC)About PERC The Pediatric Epilepsy Research Consortium (PERC) began forming in 2010 when two groups each began an effort to mobilize and...