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Resources for Rare Organizations

Starting a Rare Organization

Interested in starting a rare epilepsy / advocacy organization? There are many resources available to help you navigate the process and to learn how to get started. 

Become a Member of REN

Do you represent a patient advocacy group with a rare epilepsy population that is not currently a part of REN? Contact us to apply for membership. 

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Resources for Researchers

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Access REN Data

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View Epilepsy Landscape
Analysis

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